Comments on: Colon Chat http://mothersofbrothers.com/colon-chat/ All about life with boys...and life in general Sat, 21 Dec 2019 17:09:13 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Bibbles http://mothersofbrothers.com/colon-chat/comment-page-1/#comment-56675 Bibbles Fri, 11 Oct 2013 16:25:13 +0000 http://mothersofbrothers.com/?p=7110#comment-56675 Hi, my 9 year daughter has just been diagnosed with hypoganglionosis, we are meeting with surgeons to discuss her options. I was told this condition/disease is extremely rare. Basically she is completely unable to poo without the use of daily rectal enemas (not a nice experience for all involved). They thought she had hirschsprung disease but upon her biopsy results they found hypoganglionosis. To be honest, I am absolutely petrified about what lies ahead for my little angel, I think it's life changing stuff for her. It's nice to know she isn't alone out there suffering this awful disease. All the best to you xxx Hi, my 9 year daughter has just been diagnosed with hypoganglionosis, we are meeting with surgeons to discuss her options. I was told this condition/disease is extremely rare.

Basically she is completely unable to poo without the use of daily rectal enemas (not a nice experience for all involved). They thought she had hirschsprung disease but upon her biopsy results they found hypoganglionosis.

To be honest, I am absolutely petrified about what lies ahead for my little angel, I think it’s life changing stuff for her.

It’s nice to know she isn’t alone out there suffering this awful disease.

All the best to you xxx

]]> By: Sazzles http://mothersofbrothers.com/colon-chat/comment-page-1/#comment-55711 Sazzles Sun, 22 Sep 2013 21:41:02 +0000 http://mothersofbrothers.com/?p=7110#comment-55711 Hi there, my 9 year old daughter has just been diagnosed with hypoganglionosis too. We are waiting to see the surgeon in a couple of weeks. I understand this is a really rare disease, so it's good to hear from someone who has first hand experience. Wishing you well xxx Hi there, my 9 year old daughter has just been diagnosed with hypoganglionosis too. We are waiting to see the surgeon in a couple of weeks.

I understand this is a really rare disease, so it’s good to hear from someone who has first hand experience.

Wishing you well xxx

]]> By: Elizabeth Grant Thomas http://mothersofbrothers.com/colon-chat/comment-page-1/#comment-21431 Elizabeth Grant Thomas Tue, 17 Apr 2012 03:08:51 +0000 http://mothersofbrothers.com/?p=7110#comment-21431 Jessie, have you ever considered writing a memoir about your journey post-colon? Seriously. I think it would be super interesting and such a fascinating perspective! Jessie, have you ever considered writing a memoir about your journey post-colon? Seriously. I think it would be super interesting and such a fascinating perspective!

]]> By: Liz http://mothersofbrothers.com/colon-chat/comment-page-1/#comment-21107 Liz Thu, 12 Apr 2012 20:38:58 +0000 http://mothersofbrothers.com/?p=7110#comment-21107 You continue to make me laugh, and cry and sometimes cringe, all at once! Love you, Jess! You continue to make me laugh, and cry and sometimes cringe, all at once!
Love you, Jess!

]]> By: kshimer http://mothersofbrothers.com/colon-chat/comment-page-1/#comment-21096 kshimer Thu, 12 Apr 2012 15:55:14 +0000 http://mothersofbrothers.com/?p=7110#comment-21096 Perhaps one of the most unique blog posts ever. Well written and humorous. Thanks for sharing! Perhaps one of the most unique blog posts ever. Well written and humorous. Thanks for sharing!

]]>